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Since early March, our small hero Artem has a new neighbor in his bedroom - a non-invasive ventilatory support device (NIVS). Thanks to you, our dear supporters, we were able to complete acquisition and pay a specialist to configure it. Now, the boy sleeps at night guarded not only by his mother, who changes his body position several times, but also his new friend helping him to breathe.

Maybe life with spinal muscular atrophy (SMA) is unusual, but there is still room for a lot of joy and happiness. Besides breathing exercises, physical training, massage, and swimming, there are some more pleasant things in Artem’s routine: walking outside, watching favorite cartoons, playing table games, and drawing. He recently attended a great circus performance!

Sadly, the disease is progressing. Lacking abdominal and dorsal muscles, his backbone and chest are deforming which depresses respiration. A pulse oximeter, aspirator, expectorator, devices to support respiratory function, and a special diet supplemented with amino acids and vitamins top the list of the things that children with SMA need. Without the special equipment, Artem cannot live!

To allow a comfortable life at home rather than hospitalized, Artem needs an oxygen concentrator and (because he cannot cough) an aspirator to remove mucus from his respiratory passages.

Despite the prognosis and thanks to the care and devotion of his parents, Artem lives! Let’s help this wonderful boy to live as long as he can living at home!

On June 5, a project started on the Ukrainian Charity Exchange Curative oxygen for Artem Therefore, you can help the boy and the site our partners.

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