Kamila Muratova, born on 22.10.2013
Diagnosis: Focal epilepsy with generalization.
Discharge summary: page 1, page 2
Donation income and expense report
Epilepsy stole Kamila’s carefree childhood. The disease first manifested when she was four years old. Since then, numerous examinations and treatments have followed — both in Ukraine and abroad.
It took several years for doctors to establish the correct diagnosis — focal epilepsy, a condition where certain areas of the brain malfunction due to abnormal electrical activity. Each seizure damages the brain and gradually destroys it. At one point, the number of seizures reached up to ninety per day, and medication stopped working. The only hope was urgent surgical intervention.
Four years ago, Kamila underwent two complex brain surgeries in Turkey, focusing on the occipital region. Her condition improved significantly — seizures became less frequent. However, this year the disease reactivated, and doctors discovered a new source of abnormal electrical activity in another part of the brain. Now Kamila urgently needs implantation of a vagus nerve stimulator (VNS), which works as a “regulator” for the brain: it reduces the frequency and strength of seizures and, in some cases, can stop them entirely.
Kamila is currently on intensive medication therapy, which only temporarily restrains the disease. The fear of sudden seizures forces her to stay home and avoid any activities. Yet she does not lose hope — she dreams of school, friends, and a future career as a veterinarian.
The surgery in Turkey is scheduled for January 19. Its cost is 1,200,000 UAH (29 thousand USD). For one family during wartime, this amount is overwhelming. But together, we can give Kamila a chance for recovery — a life without fear and limitations. A life where childhood truly exists.
Kamila’s parents and several charitable organizations are also raising funds for the surgery. We stay in close contact with them and are collecting part of the needed amount to ensure the girl receives treatment on time.
