Viktoria lived contrary to all forecasts of doctors, contrary to the disease, which completely destroyed her body. Our small and fragile girl did things which were not possible, she did marvels.
For all of us, Viktoria was a model of will power and love to life. My other mommies, whose children also live with cystic fibrosis, used her as an example to teach their little ones how to fight for their life and health.
Viktoria lived 3.5 years in spite of her disease. This is the time for which I have known her and her father Sasha. Back then doctors tried to convince me that the girl was a goner and said she would last for a couple of months as a maximum. But all this time Viktoria was not trying to survive, she was living her life and enjoying it, despite her disease and all the sufferings.
My little girl LIVED each day that was given to her. Her disease was severe, but nevertheless she made her each day full of sense, no matter how difficult it was. The girl, even after being connected to an oxygen concentrator, was still performing on stage and singing wonderful songs, taking part in contests and winning them. She was making finery not getting up from her bed, she never sat idle. Viktoria loved and appreciated life, even if it was cruel and difficult.
Many of my mommies, who knew about her severe state, kept asking me: “How can we go on if she is gone? Whom should we look up to, whom should we take our lead from, what should we tell our children?” Before, I did not know the answer to this question. But when I visited Viktoria in the Intensive Care Unit, I saw her fighting, I talked to her and now I have the answer. Nothing should change in the lives of other children and in their relations with Viktoria after her death. This little girl will always be a winner. Mommies may still use her as an example, if they need a model of will power and fight for life.
My beloved girl taught me lots of things: thanks to her, I pay less attention to bias, I learned to hold my ground firm (when I know I am right), I learned to believe in wonder and to make wonder happen.
I would like to say a big thank you to Viktoria’s father, Sasha, for being next to his daughter for all this time, so that they could go through all the difficulties, all the troubles and pains together. Unfortunately, such fathers are rare. Sasha did all he could do, all things possible and impossible. I want to extend my heartfelt condolences to all friends and relatives of Viktoria and wish you all to keep the memory of her and love to her in your hearts. We all now have our guardian angel.
